Climbing the Ladder of Life
Living with Crohn's Disease

 

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Jo Copeman on August 4, 2009 at 04:05 AM said:

Thanks Nichola for your inspirational story of living with Crohn's and an ileostomy. I have experienced 20 years on and off with Crohn's and now, with an ileostomy since November last year, hope to be finally free of the insidious disease. It was wonderful to read your story and your positive attitude to life. Made me feel like I'm not the only one out there with similar problems. Best wishes.

Damian on May 12, 2009 at 07:46 PM said:

Thanks for letting me post about my project Nicky.

Follow Damian Watson as he cycles the entire Tour de France route to raise funds and awareness for Crohn’s Disease.

The e-news link is:

http://www.thecrusaders.com.au/index.php?option=com_letterman&task=subscribe&Itemid=27

To make this project a success we need 10,000 people subscribed to the e-news as this is our major avenue of raising awareness of Crohn’s.

All e-news subscribers will be in the running for a SONY Cybershot camera drawn during the ride and other great prizes from project sponsors including Dirty Dog Eyewear, Winners Sports Nutrition and dinner vouchers at Bergerac French Restaurant.

Thanks very much for your help

Regards

Damian

Denise Spencer on April 15, 2009 at 11:54 PM said:

Hi Nicky, My husband directed me to your website after he was speaking to one of his work collegues who had been speaking to you. I have had Crohns Disease for 20 years, since I was 29. I have also had numerous surgeries both for and as a consequence of my Crohns.

I am lucky that I have a full time job and a totally fantastic boss who is very understanding. I had to have most of Jan 2009 off work as I had a major flare up and a huge reaction to the cortisone tablets I was prescribed (huge dosage) after being on hydracortisone in hospital. I was lucky, I had my children before I was diagnosed. Your book sounds very interesting. I will most likely purchase it. I don't have a ileostomy as yet, but it will probably be in my future as well I suppose.

Dianne Parry on April 1, 2009 at 08:19 PM said:

Nicky,
It was a privilege to nurse you in your most recent unfortunate episode in hospital. Life has handed you many lemons but you have had the abiity to turn them to lemonade. I was impressed by the maturity you handled your situation and still had the room in your heart to encourage those around you. My husband and I both read your book and applaude you for your honesty and bravery. I trust many more lives will be touched by you in the future and will be the richer for it.
Love, Dianne Parry.

Keiko on January 13, 2009 at 06:11 AM said:

badly need your help. It?s like your batteries get low, and you need to charge them on someone else?s story. I am from Ukraine and learning to speak English, give true I wrote the following sentence: "Having read a lot of resumes over the years, jeffrey nails it in his post how to write a bad resume."

Thank you very much :p. Keiko.

mary quinlivan on July 25, 2008 at 10:09 AM said:

I really recommend this book inspiration to anyone that has crohns 5 STAR

Tracy Selwood on July 6, 2008 at 04:15 PM said:

Hey Nicky As promised, the tears flowed reading the book on the plane trip to Thailand! Had read every page by the time we flew over Darwin. It bought back a lot of memories. More importantly, I am sure your book will help many who are going through tough times and will take inspiration from your positive attitude and ability to keep smiling. I am looking forward to the next book and wish you all the best for a healthy, happy future. Much love, Tracy, Jason and Renee,(not forgetting Jake, Rusty and Audrey!)

Robertt Wilson on May 24, 2008 at 04:07 AM said:

WOW!

I'm impressed Nic! Very inspiring! Very awakening! Very professional! I can't wait to look/ read throu it all! Makes my cancer seem so small and trivial! I admire your courage and braveness!

I'll be in touch! Robertt.

Mark on February 12, 2008 at 12:23 AM said:

Hello!! I have UC, but my Sister has crohn's. Mark

Maureen - Darwin NT on February 10, 2008 at 03:55 PM said:

Hi

I am another one with a story very similar to yourself, I was diagnosed with Chrohn's just before my 21st birthday, have had many operations and cannot have children - we have a very spoilt ridgeback dog named Scoobie, before Scoobie their was Tishy who died of cancer at 15 years. I didn't let my disease stop me from riding my horses and have done many different things in my life - mostly living in the outback with no contacts at all except the Cancer Foundation in Darwin who I get my Ileostomy supplies mailed from, we only ever had a medical clinic and sometimes a doctor in town if we were lucky but I love the outback and couldn't live anywhere else.

Sharyn Baker on January 25, 2008 at 02:05 AM said:

Hi Nicky, After reading the article you wrote in the Ostomy Australia magazine I am very keen to get a copy of your book. My story is very similar to yours by the sounds of it. I was diagnosed with Crohns when I was 17, have had plenty of operations and could only have one child. I am interest in the book for my family so as they can maybe understand what I go through everyday living with Crohns (not that I would dare whinge. Anyway good on you for getting this together and I really look forward to reading it. Regards Sharyn

Jill, NZ on January 23, 2008 at 06:46 PM said:

Hi Nicky,

Hope the sales are going well. I have just ordered another copy for a friend.

Also hope the health is stable, I am sure the good weather will make a differnce.

Cheers Jill

Eileen Ranatunga on January 6, 2008 at 07:45 PM said:

Hi Nikki, I too suffer from Crohns for over 12 years. I was diagnosed with the disease when I was in my late 40's. But I have not been through half of what you have been through, but I don't envy you. I pray that you will be better from now on. I too feel depressed at times and feel I need someone to vent my feelings. I think some counselling would help me greatly. Thank you very much for writing this wonderful book which was given to me by my good friend as a gift.

Vicky Dunn on December 13, 2007 at 08:50 PM said:

Hi Nicky I have just orderd your book as i to have had Chrons for 20 years i was also diagnoised at 16 and i was also from new-zealand. i have been in Brisbane for 16 years now and had to have a hystorectomy at the age of 25 so a very similar past. I have had 14 major opperations and have had an ostomy for 19 years i have had another opp 6 months ago and at the moment feel wonderful i have had a very rough 20 years and i have been through a marriage and now have a wonderful partner who understands the ups and down of this diease. I to have started writing but have not finished yet love to keep in contact vicky dunn

Rachel Harris on November 12, 2007 at 07:52 PM said:

Hi Nicky, I have read your book and thoroughly enjoyed it. You have certainly been through alot in your life probably more than I ever realized. I wish you all the best for the future and I am sure that you will succeed in whatever you decide to do with your future. I do hope the next time you are over that we catch up for old time sake. Take care my dear my love always Rachel

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