Climbing the Ladder of Life
Living with Crohn's Disease
'A Day With Nicky'
GO FUND NICHOLA
Second Book 2018
Testimonials book no 2
Please feel free to share your thoughts and feelings about new autobiography.
January 28, 2008
at 11:03 PM said:
Hi Nicky you are really my hero!! As you know I am very far from you and lonely mean do not have any crohns patients to chat and to share idea ,but now I get you I am lucky man ,I get you with full of life experience .and you are open ,kind,and concern for other persons ,you also sent the book by your cost by understanding my problem ,God bless your knee.
Here in one side I can say I am lucky and in other not.when I say lucky up to now I did only 3 surgeries for fistula and steroid is doing his work ,and have family support too.even it is very hard to pay all medical bills .when I say unlucky here in our country Ethiopia things are very hard for me to live with crohns .like I can not get good treatment,follow ups ,medicines ,and do have no practical experience and so on .things are hard like passing a camel through a needle hole.all these things make things worse for me.i am just 23 ,I do not know what will happens if steroid stops working or surgery is needed like you. it is really very hard to predicate .can I pass all these or ….??? Only God knows .at this time I remember ur motto on page 44 and I agree with you 100%.
Finally I would like to say thank you and wish all the best for u and ur familly .hopefully there is no any surgery from now on.i do not forget u in my life .i put your book next to my bed with respect.when I am not in good condition it will give me hope and strength.
MAY GOD BE WITH US ALL
WE WILL CLIMB THE LADDER TOGETHER
January 10, 2008
at 3:46 AM said:
Well I received your book this afternoon and have just finished reading it, with a glass of Chardy in hand and a box of kleenex. I just hope I don't use up all the space in your testimonial area!
Firstly, let me say, I admire your strength and applaud you for putting your journey on paper. Ironically I have been told that I have handled my Crohn's and operations which resulted in a stoma, with a positive attitude and good sense of humour, but lately have felt myself slipping as a result of denial and depression. Reading your story could not have come at a better stage in my life.
I firstly cannot believe the similarities in our lives! I know it sounds a little corny, but reading your story alot of the time was like reading about myself. So many similarities, not in our Crohn's but in our lives. I am also 37, grew up constantly being called the "baby" similar scenario, as in thought to be the spoilt one but also the rebel and a little lost. Also the constant transiant person never settling in one place for very long...I had a pet goat named gypsie who also had a love for clothes on the line and 23 pet kangaroo's one of which was twinkles who was blind and I used to carry around in a pillow case which she thought was her mother's pouch. Anyhow, I won't go on but our similarities are quite amazing and were constant throughout your personal journey, not so much your health journey... One of my "Angels on my Shoulder's is my big sis who lives on the Gold Coast (I live in Brisvegas) and she is very spiritual and gave me my gratitude stone.
Everything that happened to me happened very quickly, from diagnosis, to operation, to ICU and fighting for life due to poisoning of my system due to leakage. I was told that I could have a reversal in 12 months, it will be 2 years at the end of January 2008 and I have decided against even contemplating this option.
My marriage broke up due to my husband not being able to deal with my condition and was very painful due to infidelity and made me doubt my own self esteem even more, I am now trying to feel my way through "single life" and having a lot of trouble with how to even bring up the subject of "oh by the way, there is something I should tell you".
Your book has given me strength at a time when I really needed it. I was in advertising for 12 years and one of my clients was the Leukaemia Foundation of Australia. I consider that experience a blessing as even before the Crohn's and during my own hard times I have always had the outlook that there is always someone worse off than yourself and been grateful for what I have. Something I have been starting to learn recently however, is that its okay to be sad, and let myself cry and feel bloody sorry for myself for a moment before I pick myself up again and move on as you can't be strong and pretend all the time. We all realise I think that there are worse off people out there but should never deny our own pain because its "ours" and that is what makes it worse... does that make sense????
I think my saving grace has been my Mum (My angel) and my Son who has kept me going on the days when I wanted to give up. But also my sense of humour... I named my stoma BARNEY, I was going to call him "Showbag" as everyone knows that they are always full of shit. But Barney and I have started to accept each other. Sometimes I'll say to him when he makes noise "Oh shut up Barney, why are you being an arsehole?" then I realise, well to be honest... he is trying to be! Or do stupid things like send invitations to my friends for Barney's 2nd Birthday 30/01/08 and make note that lolly BAGS will not be given out as it may offend Barney... Yes, I do have a weird sense of humour. Even when I went to hospital I told my friends that they could see my operation on line at www/:trace or in words www slash colon trace.
Anyway, now that I have used up most of your testimionial space, I once again wanted to say a huge THANK YOU! I recently lost the only friend that I had who I could talk to about Barney as she had her bowel removed from Cancer and as much as I have wonderful friends I have been feeling a little lost without her. Your book has helped to give me back some of the positive perspective I was looking for and to snap me out of the somewhat depressing state I have been in.
I have never received any counselling and think it would really help me at the moment as feel myself slipping a little as I am only now starting to accept this after two years of denial. If you could offer any advice I would be very grateful as to where to go and what to do. I'd even be grateful to talk to anyone who can tell me how the hell to deal with those wonderful noises Barney makes in public without feeling like a complete freak!
So anyway, thank you Nicky for sharing your journey. I admire your strength and thank you for the strength that reading your book has given me.
Tracey & Barney.
0418 881 215
December 12, 2007
at 9:27 PM said:
You are one of the most fantastic people I have ever met!
After what you have gone through, the spirit you have is amazing!
I wish I can stay as positive as you when things happen to me.
You are kind, and very passionate.
I look forward to spending time with you.
October 14, 2007
at 6:21 PM said:
I have known Nicky for many years and have seen her overcome so much with her illness and operations. No matter how sick she is she always manages a smile and a few jokes. Nicky is usually more concerned about others and making sure they are not stressing about her. I am very proud of Nicky for writing her book and sharing her story with others. Nothing seems to stop her!! Nicky is a true inspiration to her friends and family and now to others through her book. I highly recommend others read her book - if you are unwell you will gain courage to keep going and if you are in good health you will come to realise how lucky you are. Congratulations Nicky - I wish you all the best in getting this book out to others who need to read in it.
October 12, 2007
at 10:24 PM said:
Thank you for writing your book Nichola and sharing your journey so openly. I have finished the book feeling I have been lucky to be introduced to a delightul young woman with an amazing spirit to endure and overcome. Woven around the progression of the Crohn's is a genuine story of family life, growing up, friendships, joys and disappointments and wonderful personal growth. Nicky I wish you all the best for the future and hope there is much less of the tough stuff and an abundance of happiness in store for you.
October 11, 2007
at 6:13 PM said:
Congatulations Nicki. Not only do you cope with health issues, you manage to inspire the rest of us. You have put your heart and soul into this book and I am very proud of your achievements. This book has helped you to deal with a lot of dark issues in your life and will encourage others to take every step in their busy lives with enthusiasm and courage like you. To overcome extremely difficult circumstances and learn from these experiences just only makes us think how lucky we are to have friends and family. May this book take you into other peoples hearts like you have been apart of ours. Thank you for sharing your journey.
Veronica Rangi In-gill NZ
September 20, 2007
at 7:27 PM said:
It took guts to bare your sole like you have Nicky.I cannot begin to imagine what you have been through.You are strong like your beautiful mother Merle. I have known you all of your life, can remember the day you were born and am very proud of you.My LOVE and prayers are with you always Nicky
Shirley Ellis NZ
September 13, 2007
at 12:57 AM said:
Thankyou so much for your book Nicky. I am sure it will be of interest to alot of people, even those who don't have Crohn's disease. You are a very brave lass and I just wish I could have met you while I was in Australia. I enjoyed reading the book on the way home on the plane. I think life is about bouncing back after setbacks, these are all sent to try us and how we tackle things shows in our personalities and our happiness. I have been an ostomate for five years and I am very lucky to have had few problems since. Keep up the good work, live life to the full, enjoy your lovely family connections, keep faith
and god bless.
September 4, 2007
at 3:25 AM said:
What an inspiration you are Nichola. I read your book in a day as I couldn't put it down. You have been through so, so much and can still see the light. You have truly inspired me. Although only being diagnosed as recently as August, 2007 your journey has opened my eyes about how minor my Crohns is compared to yours. I am on my medication now and it seems to be working. I thank you for your emails in helping me sort out my diet prior to the commencement of my medication. I have learnt from you that you should continue on as normal with the things you love most. I now always say to myself "I'm lucky as there are people alot worse off than me". Thank you for teaching me to look at the bigger picture. A truly inspirational read from a very inspirational lady. Rocky Young, NSW
August 19, 2007
at 3:51 PM said:
You are a true inspiration and a wonderful example of how some of us manage to get on with life despite a large number of interruptions. Your book is a wonderful read and one that cannot be put down from start to finish.
Best wishes for a healthy future - you have proved to everyone that you can do it.
LIFE IS FOR LIVING AND YOU ARE LIVING.
August 2, 2007
at 10:51 PM said:
Nicky, you did it!!! The book is great. I have known you for many years now and even if you have a bad day you always make the most of it. You always think that someone is worse off than you, even though you have been through so much. You are my idol and the strongest person I know. Thanks for being there for our family when life has been tuff for us too. You are such a good friend.
Kathy Crockett (Marshall) NZ
August 2, 2007
at 1:32 AM said:
To my dearest friend Nicky, I am so proud of you and what you have done for yourself but most importantly to all the help you have given to other people out there who have the same condition. I am honoured to call you my best friend and was in tears from start to finish when reading your book, to read all what you have been through over the years of operations and ups and downs touched my heart.
The time we spent together at Lorneville I will treasure for the rest of my life.
Your Mum and Dad would be so proud of you Nicky.
July 19, 2007
at 7:57 PM said:
Hi I have read your book, you are a marvel. I already knew
most but what an inspirational journey you have endured and
emerged from so beautifully. My friend I am so proud and so
fortunate to be your friend. X
Pat & Ron Dixon, Gold Coast, 20th July
July 19, 2007
at 4:56 PM said:
We congratulate Nicky on the success of her book, which she deserves, as we're sure there were times when writing about her struggle was very difficult. How fortunate Nikki is to have the total support of her family, then and, we're sure, now as well. We know her book will help other people with this illness and all the very best wishes for your future.
July 13, 2007
at 6:50 PM said:
I congratulate Nicky on having the courage & the endurance to write her story. I rarely find a book that I can't put down, & that has me laughing and crying with it's ups & downs. I have known Nicky for about 4 years, & she is a truly remarkable person who never dwells on her own situation & is always ready & willing to help others. Even before I knew about her illness I found her to be an inspirational person with her happy, bubbly nature & her positive outlook on life. Anyone can learn valuable life lessons from reading her story.
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